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Hearts Open Hearts Broken

1/31/2015

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PictureMarcy's Angel Flight to treatment
In a week that began with a sad and joyful celebration of the life of a beloved matriarch; that ends today in another such ceremony, each the result of 30 hours of immersion in some of the most intimate tasks of family life; a week in which I sat in a circle with a 30 year old and heard him say the words, "I have a brain tumor" while maintaining a long-distance vigil for my friend Marcy who lies in a California ICU bed undergoing experimental treatment for her nearly five-year-old stage IV cancer - in this week I've thought much about what it takes to live broken-hearted. 

Without reliance on the easy platitudes, the bargains, the distractions. To feel the pain of it all, the wonder of it all, the mystery that envelopes and perhaps even carries us all, if we can only glimpse it.

If we're to develop the muscles that enable us to live hearts-open/ hearts-broken, reading Andrea Carlisle's exquisite blog about life with her near-centenarian mother Alice should be required reading. A regular dose will do your soul good and teach you much about wrapping your arms around all of it: the pain and the joy of the full catastrophe of life.

This week, with Andrea's permission, I share a story of the ways Andrea and her mother honor and feed their relationship with sister Marla. Thank you, Andrea, for the fine example you offer to our grief-illiterate times.

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Go Fish
by Andrea Carlisle (c) Go Ask Alice

Marla liked to play cards. Specifically, she liked to play a game called Go Fish. During her lifetime, we played many thousands of games of Go Fish.

You can play with two people. The rules are simple:

Deal six cards to each player.

One player asks the other for something she already has in her hand. For example, if I have a five in my hand, I may ask if you have any fives.

The goal is to accumulate pairs. The pairs pile up. Whichever player ends up with the most pairs is the winner.

If you have a card I ask for, perhaps that five I mentioned above, you must give it to me. I take it and put the two fives down together on my side of the table.

If you do not have the card I ask for, you tell me to “Go fish.”

The anniversary (36 years) of Marla’s death was on Monday. She died on my father’s birthday. He died twenty-one years after she did. Twenty-one sad birthdays.

A few days before the anniversary, Alice seemed to be on and off track about my sister’s life. She could remember some things, but not others, things I thought she would never forget. “Who put the deck of cards in Marla’s hands at her funeral?” she asked me one day. “Did you?” 

Read the rest on Andrea's blog...


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The Narrative of Love

1/23/2015

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In my in-box this week, from two very different sources, was an essay from The New York Times titled "Getting Grief Right" in which the author writes: “'All sorrows can be borne if you put them in a story or tell a story about them,' said the writer Isak Dinesen. When loss is a story, there is no right or wrong way to grieve. There is no pressure to move on. There is no shame in intensity or duration. Sadness, regret, confusion, yearning and all the experiences of grief become part of the narrative of love for the one who died."

This captures the work I do as co-creator of ceremonies of remembrance: I listen to, listen for, reflect back the narrative of love. I hear the stories and help the bereaved tell the stories, through words, photos, artifacts, ritual, song, and ceremony.

The narrative of love is not only the work of grief; perhaps it is truly the call of life itself. Our way of saying: I am paying attention to that which connects us. Making our web of connection visible, feeding it.

This past week I joined members of my family in celebrating the installation of my cousin Mary as Rector (head clergy person) at St Mary's Episcopal Church in Harlem. I returned home to the pleasure of pronouncing legally wed two women on their 37th anniversary, just as I prepare to lead two different Celebrations of Life these coming weekends.

What unifies all of these sacred milestones is a narrative of love: the love that led Mary to answer her call; the love that's lasted 37 years only to commit to as many more as they are granted; the love for the lives mourned and celebrated; my love and gratitude for the blessings of this work.

Getting Grief Right
by Patrick O’Malley
(an essay from Couch, a series about psychotherapy at nytimes.com/opinionator)

By the time Mary came to see me, six months after losing her daughter to sudden infant death syndrome, she had hired and fired two other therapists. She was trying to get her grief right.

Mary was a successful accountant, a driven person who was unaccustomed to being weighed down by sorrow. She was also well versed in the so-called stages of grief: denial, anger, bargaining, depression and acceptance. To her and so many others in our culture, that meant grief would be temporary and somewhat predictable, even with the enormity of her loss. She expected to be able to put it behind her and get on with her life.

To look at her, she already had done so. The mask she wore for the world was carefully constructed and effective. She seemed to epitomize what many people would call “doing really well,” meaning someone who had experienced a loss but looked as if she was finished grieving. Within a few days of the death of her daughter she was back at work and seemed to function largely as before.

The truth of her life was something else. Six months after her baby’s death she remained in deep despair. She was exhausted from acting better than she felt around co-workers, friends and family. As is so often the case, she had diagnosed her condition as being “stuck” in grief, believing that a stubborn depression was preventing her from achieving acceptance and closure.

Was she in denial, she wondered. She also wondered if she was appropriately angry. The bottom line was that she knew she was depressed — a psychiatrist had prescribed an antidepressant — and that is what she wanted me to treat.

Earlier in my practice, I would have zeroed in on that depression. Was there a family history? Had she been depressed before? Was the medicine helping? What were her specific symptoms? Knowing the answers might suggest why she was stuck. Or I would have reviewed the stages of grief, as she had, looking for one in which the work remained incomplete.

But I had begun to operate differently by the time Mary showed up, which was 10 years after my own loss. My firstborn child had also died before he was a year old. It was why Mary had chosen me.

In our first session I put Mary’s depression aside. I asked her to tell me the story of her baby rather than describe the symptoms of her grief. Though she was resistant, she eventually started to talk.

Like most other things in Mary’s life, the baby, whom she named Stephanie, was planned. Mary was delighted with her pregnancy and had wonderful dreams for her daughter. After a routine delivery, Mary stayed home with Stephanie for the first three months. Returning to work had been difficult, but Mary was comfortable with the child-care arrangement, and managed to balance motherhood with her busy professional schedule.

Then Mary told me about the Saturday when she went to check on her napping daughter and found that Stephanie wasn’t breathing. She began C.P.R. as her husband called 911. There were moments of surreal focus as she and her husband tried to save their baby. Then this woman, so accustomed to being in control, had to surrender her daughter to an emergency crew. Her husband drove as they followed the ambulance to the hospital.

She described the waiting room in great detail, down to the color of the furniture. When the hospital chaplain walked in with the doctor she knew her baby was gone. She and her husband were taken into a room where they held the baby for the last time.

At this point in her story Mary finally began to weep, intensely so. She seemed surprised by the waves of emotion that washed over her. It was the first time since the death that the sadness had poured forth in that way. She said she had never told the story of her daughter from conception to death in one sitting.

“What is wrong with me?” she asked as she cried. “It has been almost seven months.”

Very gently, using simple, nonclinical words, I suggested to Mary that there was nothing wrong with her. She was not depressed or stuck or wrong. She was just very sad, consumed by sorrow, but not because she was grieving incorrectly. The depth of her sadness was simply a measure of the love she had for her daughter.

A transformation occurred when she heard this. She continued to weep but the muscles in her face relaxed. I watched as months of pent-up emotions were released. She had spent most of her energy trying to figure out why she was behind in her grieving. She had buried her feelings and vowed to be strong because that’s how a person was supposed to be.

Now, in my office, stages, self-diagnoses and societal expectations didn’t matter. She was free to surrender to her sorrow. As she did, the deep bond with her little girl was rekindled. Her loss was now part of her story, one to claim and cherish, not a painful event to try to put in the past.

I had gone through the same process after the loss of my son. I was in my second year of practice when he died, and I subsequently had many grieving patients referred to me. The problem in those early days was that my grief training was not helping either my patients or me. When I was trained, in the late 1970s, the stages of grief were the standard by which a grieving person’s progress was assessed.

THAT model is still deeply and rigidly embedded in our cultural consciousness and psychological language. It inspires much self-diagnosis and self-criticism among the aggrieved. This is compounded by the often subtle and well-meaning judgment of the surrounding community. A person is to grieve for only so long and with so much intensity.

To be sure, some people who come to see me exhibit serious, diagnosable symptoms that require treatment. Many, however, seek help only because they and the people around them believe that time is up on their grief. The truth is that grief is as unique as a fingerprint, conforms to no timetable or societal expectation.

Based on my own and my patients’ experiences, I now like to say that the story of loss has three “chapters.” Chapter 1 has to do with attachment: the strength of the bond with the person who has been lost. Understanding the relationship between degree of attachment and intensity of grief brings great relief for most patients. I often tell them that the size of their grief corresponds to the depth of their love.

Chapter 2 is the death event itself. This is often the moment when the person experiencing the loss begins to question his sanity, particularly when the death is premature and traumatic. Mary had prided herself on her ability to stay in control in difficult times. The profound emotional chaos of her baby’s death made her feel crazy. As soon as she was able, she resisted the craziness and shut down the natural pain and suffering.

Chapter 3 is the long road that begins after the last casserole dish is picked up — when the outside world stops grieving with you. Mary wanted to reassure her family, friends and herself that she was on the fast track to closure. This was exhausting. What she really needed was to let herself sink into her sadness, accept it.

When I suggested a support group, Mary rejected the idea. But I insisted. She later described the relief she felt in the presence of other bereaved parents, in a place where no acting was required. It was a place where people understood that they didn’t really want to achieve closure after all. To do so would be to lose a piece of a sacred bond.

“All sorrows can be borne if you put them in a story or tell a story about them,” said the writer Isak Dinesen. When loss is a story, there is no right or wrong way to grieve. There is no pressure to move on. There is no shame in intensity or duration. Sadness, regret, confusion, yearning and all the experiences of grief become part of the narrative of love for the one who died.
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  • Certified Life-Cycle Celebrant ® | Funeral & Wedding Officiant | Interfaith Minister
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